Jon Hastie has Duchenne – a severe form of Muscular Dystrophy. Prognosis – paralysis, 24 hour ventilation and an early death.
Jon decides to travel around the UK and Holland visiting amazing Duchenners who have carved out remarkable lives for themselves, despite this most crippling of disabilities.
A Life Worth Living is no ordinary road movie. It’s a fun, inspiring, poignant and surprising rock ‘n roll journey that takes us into the lives of guys who, against all the odds, show us how valuable life is. [UK]